Réseaux Européens

PARTENAIRES

ENCALS

EUROPEAN NETWORK FOR THE CURE OF ALS

ENCALS est un réseau européen de Centres SLA impliqués dans des activités de recherche clinique et fondamentale sur la SLA et autres maladies du neurone moteur. Les principales missions de ce réseau sont le développement d’une base de données épidémiologiques européenne sur la SLA ; la coordination des actions de recherche pour le développement de nouveaux traitements ; le développement de la collaboration entre les différents organismes de financement en Europe pour le soutien d’études cliniques européennes.

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International Alliance on ALS / NMD

ASSOCIATIONS

The International Alliance of ALS/MND Associations was founded in 1992 to provide an international community for individual ALS/MND associations from around the world. Our vision is to engage with our members, prospective members and other organisations to share resources globally, advance awareness and support people with ALS/MND worldwide…

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Euro NMD Network

FOR RARE OR LOW PREVALENCE COMPLEX DISEASES

EURO-NMD is a European Reference Network for the thematic grouping of rare neuromuscular diseases (NMDs), a broad group of related disorders that represent a major cause of mortality and lifelong disability in children and adults. NMDs are caused by acquired or genetic defects of motorneurons, peripheral nerves, neuromuscular junctions or skeletal muscle, resulting in muscle weakness and wasting, swallowing and breathing difficulties, and cardiac failure. NMDs are difficult to recognize, and patients experience long delays in diagnosis. No curative treatments yet exist for any NMD and their rarity and diversity pose specific challenges for healthcare and research, and for the development and marketing of therapies.

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